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Cystic Fibrosis Killing ThousandsJust in case you failed to notice I am currently trying to complete 2013 miles in 2013 to raise money and awareness for the Cystic Fibrosis Trust. The CF Trust is dedicated to promoting excellence in research and clinical care, as well as providing practical support and advice to people with cystic fibrosis and their families.

The CF Trust is working for people like 23-year-old Sarah Horscroft, who has a one in three chance of dying before she gets the organ donation she is anxiously waiting to receive. Sarah was diagnosed with cystic fibrosis when she was just 15 months old, she had half her left lung removed at 18-months. Now Sarah has only 25% of her lung function and is on the waiting list for a transplant. Nearly 1 in 3 people with cystic fibrosis die while on the waiting list. The cystic fibrosis trust says more must be done to help people in Sarah’s situation.

Here is Sarah’s story as covered by the BBC’s South Today:

[youtube]http://youtu.be/6LhliJS8Bss[/youtube]

Cystic Fibrosis A Race We Must Win2013 Miles in 2013

This year I am trying to complete 2013 miles self-powered miles. It is has been 10 years since my cousin’s son Adam lost his fight with Cystic Fibrosis. Adam was just 18 years old when when he lost his lifelong battle with CF, the UK’s most common life-threatening inherited disease. Despite spending large parts of his short life in hospital Adam never once complained, not even of a headache and was determined to make the most of everyday.

My 2013 miles in 2013 challenge is in aid of the Cystic Fibrosis Trust as I have been surprised since I started fundraising for the CF Trust just how many people are unaware of this disease and so I hope my efforts will not just raise money, but also awareness of the UK’s most most common life-threatening inherited disease.

The first person to commit to sponsoring my 2013 mile challenge has committed to 1p per mile (£20.13 in total) and this got me thinking. I am hoping that as many as possible of those reading this will commit to do the same and the best thing is, if each person does this on a “pay as you go” type approach all you will need to part with is approx £2 just after each pay day. In January I completed 205.9 miles, in February I completed a further 200.9 miles, in March I completed 185.7 miles, in April I completed 192.1 miles and in May I completed 168 miles. If you can please spare £9.53 to help the Cystic Fibrosis Trust it will be greatly appreciated.

The easiest way to give your sponsorship is to visit my Just Giving page: http://www.justgiving.com/2012-AYearWithoutBeer-CF.

2013 Miles in 2013 – The rules

The rules for my 2013 miles in 2013 challenge are quite simple:

  1. All miles must be completely self powered (no motors, sails, etc)
  2. I must be able to evidence all miles, either via GPS or with a picture of any static gym equipment

To complete my 2013 miles I will be running, cycling, rowing and who knows, I might even try a few other self powered methods along the way.