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trunki-pink-trixie-frontMy 4 year old daughter loves her bright pink Trunki. It doesn’t surprise me. It was obvious to me when I saw the inventor of the Trunki, Rob Law, make his pitch on Dragon’s Den back in 2006 (3 years before may daughter was born) that all kids would love one of these ride-on suitcases, what wasn’t obvious and indeed I have only just found out, is that Rob Law was born with Cystic Fibrosis.

Rob Law has made a video to inspire young people coming to terms with the challenges of living with cystic fibrosis. The 35-year-old shares the thrilling story of how he overcame constant setbacks and defied the mighty dragons of BBC’s ‘Dragons’ Den’ on the way to making his ride-on children’s luggage an international phenomenon. Rob also discusses how living with cystic fibrosis won’t get in his way, and how he is determined not to let his condition define him.

The video was made in collaboration with ITV’s Tim Miller, himself a parent with cystic fibrosis. The video’s main aim is to inspire younger people who are struggling to manage their cystic fibrosis as they navigate adolescence and the transition to adulthood, to never give up, and to keep taking their medication and striving to be the best they can.

[youtube]http://youtu.be/XJhyFJxO9Qk[/youtube]

Cystic Fibrosis A Race We Must Win2013 Miles in 2013

This year I am trying to complete 2013 miles self-powered miles. My 2013 miles in 2013 challenge is in aid of the Cystic Fibrosis Trust as I have been surprised since I started fundraising for the CF Trust just how many people are unaware of this disease and so I hope my efforts will not just raise money, but also awareness of the UK’s most most common life-threatening inherited disease.

The first person to commit to sponsoring my 2013 mile challenge has committed to 1p per mile (£20.13 in total) and this got me thinking. I am hoping that as many as possible of those reading this will commit to do the same and the best thing is, if each person does this on a “pay as you go” type approach all you will need to part with is approx £2 just after each pay day. In January I completed 205.9 miles, in February I completed a further 200.9 miles, in March I completed 185.7 miles, in April I completed 192.1 miles and in May I completed 168 miles. If you can please spare £9.53 to help the Cystic Fibrosis Trust it will be greatly appreciated.

The easiest way to give your sponsorship is to visit my Just Giving page: http://www.justgiving.com/2012-AYearWithoutBeer-CF.

2013 Miles in 2013 – The rules

The rules for my 2013 miles in 2013 challenge are quite simple:

  1. All miles must be completely self powered (no motors, sails, etc)
  2. I must be able to evidence all miles, either via GPS or with a picture of any static gym equipment

To complete my 2013 miles I will be running, cycling, rowing and who knows, I might even try a few other self powered methods along the way.